Day 36 ~ 5th February, 2010
Today’s photo is of James’s ‘red book’.
I got this folder for free from NSW Health. It helps us to keep all of James’s medical stuff together. It has sections for health contacts, appointments, health problems, monitoring health problems, medications, allergies and immunisations, plastic sleeves for extra bits and pieces of paper, and a few spots for business cards. I have added some extra plastic sleeves and business card holders as James needed more than came with the folder. In the plastic sleeves I have a few journal articles about James’s condition to give to new doctors as they will not have heard of James’s condition before. I spend a lot of time researching APECED as when you care for someone with a very rare condition you can’t expect doctors to know much about it!
Carers have many jobs – one of mine is researching!
